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MY VAGINA, MY LIFE
Living life with Chronic Pelvic Pain + RGS (PGAD) + Interstitial Cystitis
Talking about dealing with it + What helped + how to get through it
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[Fertility] Knowledge is Power
It was a Thursday, just about 9:15 AM. I was sitting in the waiting room for my name to be called, feeling hopeful and hopeless at the...
Lior
Dec 18, 20207 min read
277 views
0 comments
Fertility Mind-Fuck
I pretty much remember the moment a switch went off in my head from being young, selfish, and newly-married to I want a baby. I remember...
Lior
Dec 16, 202010 min read
134 views
0 comments
Chronic Pelvic Pain & Fertility Issues
I know this isn't something people generally talk about while trying, but I want to be as open and honest as possible. After years of...
Lior
Oct 16, 20203 min read
239 views
0 comments
Medications: Gabapentin (Neurontin)
Gabapentin is used for nerve pain. Specifically, patients with RGS/PGAD use it to help with restless leg syndrome and other nerve pain....
Lior
Sep 18, 20201 min read
559 views
2 comments
PGAD + Relationships
I met my husband by chance in 2012. He was visiting a mutual friend in NYC for a birthday. When we met I had not been diagnosed yet. The...
Lior
Jul 28, 20204 min read
766 views
0 comments
Elmiron + Interstitial Cystitis + Side Effects
Those people currently taking Elmiron and are aware of the lawsuits going on can understand this title. For those not, let me explain....
Lior
Jul 23, 20202 min read
119 views
0 comments
How To Be Happy When Feeling Pain
When Googling PGAD/RGS, a lot of negative comes up. When I told my mom what I thought I had (after months of feeling depressed) she...
Lior
Jul 5, 20205 min read
431 views
0 comments
Possible Treatments
I have been getting a lot of messages regarding possible treatments. I decided to write out a list here of things I have personally tried...
Lior
Jul 1, 20206 min read
867 views
0 comments
Dealing With Flare Ups
Just when you think you're doing good, something like Covid-19 hits. Just kidding. But in reality, there are going to be things in life...
Lior
Jun 5, 20203 min read
433 views
0 comments
Surgery: Vestibulectomy
This is an interesting post, because it is the reason I decided to start a blog. After my Vestibulectomy, I was in so much pain and...
Lior
May 9, 20204 min read
865 views
1 comment
How To Explain This To Others
In the beginning, it was just easier for me to tell people I had a bladder disorder. It was short, sweet and to the point. Even after my...
Lior
Apr 28, 20203 min read
256 views
0 comments
Physical Therapy
I started physical therapy before I was "officially" diagnosed. After explaining to my mom I felt I had this disorder based on my...
Lior
Apr 27, 20202 min read
276 views
0 comments
Traveling The World, Just Being Prepared
My #chronicpainwarriors, traveling is not impossible with these diagnosis. The year I was diagnosed, I graduated in May and I went on a...
Lior
Apr 25, 20203 min read
98 views
0 comments
Sex Should Not Hurt
When I was diagnosed, I was not having sex (since I was focused on getting better). After 8 months of treatment, a guy I had a one-night...
Lior
Apr 22, 20203 min read
225 views
0 comments
Where It All Began.
There is really no easy way to talk about chronic pelvic pain, RGS-Restless Genital Disorder (PGAD), and all that comes with it. I have...
Lior
Apr 22, 20203 min read
382 views
1 comment
Tackling Things Head On.
Even thinking that maybe you have these symptoms is scary. Telling even one person you are feeling this way is humiliating. Or at least...
Lior
Apr 22, 20202 min read
99 views
0 comments
Stop Calling It Arousal. Because it's NOT.
If you think the pain and discomfort is difficult, explaining it to people is just as hard. PGAD, or a better name for it, RGS does NOT...
Lior
Apr 22, 20202 min read
205 views
0 comments
All The Symptoms Under The Sun
The thing about Chronic Pelvic Pain is that there are also so many other things that can come with it. It's an umbrella. You can feel all...
Lior
Apr 22, 20205 min read
223 views
0 comments
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